Cindy McCain Helps Raise National Awareness to Conquer Migraine
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Pledges to Take Messages for More Awareness and Research Funding to Congress PHILADELPHIA--(Business Wire)-- Cindy McCain, wife of U.S. Senator John McCain, today announced she would work to raise awareness of migraine among the public and health professionals and pledged to take her message to leaders in Washington to increase funding for research into migraines, a condition that affects some 36 million Americans. Mrs. McCain recently revealed publicly that she has suffered severe migraine attacks for the last 15 years. Mrs. McCain described her commitment and agenda in a keynote speech before 1,200 migraine specialists attending the 14th International Headache Congress, hosted by the American Headache Society, this week in Philadelphia. "I intend to work with our political leadership in this country," she said, "to raise their awareness of the public health importance of migraine." Mrs. McCain said she will call on both the legislative and executive branches of government to increase research funding for migraine and to create networks that will encourage researchers in many biomedical fields to share information and collaborate on solutions. "I intend this appearance to be the first of many that are aimed at raising awareness both in the medical field and among the public," she told the doctors. Mrs. McCain is one of an estimated 36 million Americans whose lives are disrupted by the disabling effects of a migraine attack. For her, migraine can be severe enough to require hospitalization. "I have seen migraine`s potential to transform, nearly instantly, a productive, healthy, and happy individual into a bedridden patient, wracked with pain and nausea, forced to rearrange or abandon numerous commitments to family and work," she said. "I can hardly begin to describe the number of times I have had to cancel events, tell my family that I could not fulfill responsibilities, or abandon professional commitments, all because that familiar twinge of impending migraine." Currently there is no cure for migraine and very few treatment options, according to the American Headache Society. More than 400 scientific papers - many on promising new areas of research - will be presented at the conference. "Make no mistake: we must move ahead," she said. "For me, the fight against migraine is personal. Finding a cure would not only provide relief to my struggle, but more importantly, a relief for the millions of individuals that are in some dark room, alone and in pain, away from work and family, missing out on the best things life has to offer - missing out, indeed, on life itself," said. Mrs. Cindy McCain Keynote Address 14th Congress of the International Headache Society September 10, 2009 Thank you for permitting me the privilege of addressing the 14th Congress of the International Headache Society here in Philadelphia. It is an honor to be with you, who work so tirelessly to reduce the suffering that migraine inflicts on a great portion of humanity. This meeting, entitled Independence from Headache, is taking place a few blocks away from Independence Hall, where Thomas Jefferson wrote the most important document in our nation`s history - the Declaration of Independence. What is poignant about this is that he wrote this document in the six weeks after he emerged from a prolonged migraine attack that had him confined to bed for 6 weeks. This is a bold reminder of what`s possible as we strive together to provide independence from headache for countless millions of sufferers. I`d like to express special thanks to Dr. David Dodick of the Mayo Clinic. Dr. Dodick, President-Elect of the American Headache Society, is a stellar researcher, a superb clinician, and is a wonderful spokesman for the cause that brings us together today. That cause - reducing the suffering that attends migraine - is one that has great personal resonance for me. I have, for many years, been a migraine sufferer, and I can attest to the enormous personal and social costs that migraine inflicts. While the physical pain that migraine exacts may constitute the most graphic demonstration of their enormous cost, that is just the beginning. Migraine sufferers are nothing less than the victims of a debilitating disease, and I believe we should view migraine itself as a disability. I have seen migraine`s potential to transform, nearly instantly, a productive, healthy, and happy individual into a bedridden patient, wracked with pain and nausea, forced to rearrange or abandon numerous commitments to family and work. It has happened to me. It continues to happen to me. I can hardly begin to describe the number of times I have had to cancel events, tell my family that I could not fulfill responsibilities asked of me, or abandon professional commitments, all because that familiar twinge of impending migraine. And there is something uniquely dispiriting about lying in a shaded room, alone and waiting for the pain to subside, hearing the happy sounds of life going on outside. I have spent my public career in humanitarian service, on the boards of organizations like OPSMILE and the HALO demining trust, and I have traveled the world on behalf of these and similar causes. In the course of my travels, I have seen both great suffering and great hope. In the cause of migraine prevention, today I see both. Migraine , constitutes the number one reason for visits to neurologists, and one in four American households has a migraine sufferer. Migraine today afflicts an estimated 36 million Americans, and the majority of migraine sufferers are in the prime years of their working lives. Indeed, research being presented this week at the International Headache Congress indicates that Migraine costs American business enormous amounts in lost time and lost productivity. Beyond the personal pain and disability that employees endure, it is estimated that migraine costs more than $20 billion a year in direct medical expenses and lost time on the job. A recent study estimates that 36 percent of returning Iraq war veterans suffer from migraine. Beyond the pain that headaches inflict on these brave warriors, migraine in soldiers results in impaired duty performance, constitute a frequent cause of sick call visits, and result in significant disability in over one third of the afflicted servicemen and women. We owe it to them to find a cure. Even more dramatically, it is estimated that possibly 12 million Americans - individuals generally left out of studies on migraine - suffer attacks on more days than not, some -- every single day of their lives. This is not just a cause; it`s a crisis. This plague is acute, widespread, damaging on a personal and social level, and it demands attention, research, and treatment. Unfortunately, that has not always been the view of the medical community or society at large. For years, migraine has been viewed at best as an annoyance for both sufferers and physicians, and at worst, dismissed as a psychological problem that was "all in your head." Migraines are poorly understood, and their sufferers have long been associated in the popular and medical mind with psychological fragility, rigidity and ambitiousness. They were, many believed, the more or less unique province of females, or of those who were unable to will themselves out of a psychologically-induced migraine state. Nonsense. Whether or not there exists anything approximating a "migraine personality," new studies demonstrate - and the testimony of millions of Americans supports - that we are dealing with a legitimate, complex, and unique neurological phenomenon, one that is susceptible to medical treatment and demanding of further research. As physicians dedicated to reducing suffering and improving health, you have a responsibility to look for - and find - the best treatments to help the millions suffering from this disability. That`s not always the case today. Even as the understanding of migraine, and of migraine sufferers, slowly changes, the medical community has yet to respond by devoting the time, energy and resources it will require to arrest this invisible plague. Having become personally acquainted with the various forms of headache treatment over the past years, I am astonished by the lack of progress in the field and the by the dearth of significant advances in treatment. To cite just one example, no medication has ever been designed specifically for the prevention of migraine. Instead, we are the recipients of accidental finds, such as the use of Botox for cosmetic reasons, beta-blockers for high blood pressure, or anticonvulsant drugs for epilepsy, depression or bipolar disorder. That, I`m afraid, isn`t good enough. Given the astonishing global prevalence of migraine, its enormous cost to our societies, and the pain and suffering it inflicts on its victims, we cannot stand idle any longer. The days of dismissing suffering patients with little more than a prescription and a wish for better tidings, until they reappear again and again, with the same symptoms or worse - those days are over. I personally believe that now is the time to dedicate ourselves to limiting, arresting, and ultimately ending the scourge of migraine. That is why I have dedicated myself to enhancing the understanding and awareness of migraine, and to facilitating the progress of its research and treatment. Recall that this is a disease that afflicts at least a tenth of the global population and is considered by the World Health Organization as one of the most disabling medical disorders in existence. It is time to start down a path toward the end of migraine. For my part, I will work with our political leadership in this country - and I strongly encourage all you to do the same - in order to raise their awareness of the public health importance of migraine. In making funding and policy decisions, our leaders in the executive and legislative branches must understand the scope of the problem we are here to discuss, and the need to create integrated research networks that can bring together doctors and researchers from a number of fields to share information and collaborate on solutions. Today, such centers abound for critical diseases like cancer. Not one exists for migraine. And I intend this appearance to be the first of many that are aimed at raising awareness both in the medical field and among the public. Only when we, as a country, understand the scope of migraine`s impact, and when we are prepared to deal forthrightly and realistically with a disabling disease that afflicts millions, can we move ahead swiftly toward better treatments - and, one day, perhaps, a cure. Make no mistake: we must move ahead. For me, the fight against migraine is personal. Finding a cure would not only provide relief to my struggle, but more importantly, a relief for the millions of individuals that are in some dark room, alone and in pain, away from work and family, missing out on the best things life has to offer - missing out, indeed, on life itself. If the work of medicine is to heal humanity and reduce suffering, it is hard to think of a more immediate calling than to the treatment of migraine. Thank you very much. For American Headache Society: Martha Cid, 917-348-3751 marthac@mbooth.com or Joyce Yaeger, 646-301-1544 joycey@mbooth.com Copyright Business Wire 2009
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