WITNESS: Virtual friends in a cancer world

By Janet Guttsman

Janet Guttsman is bureau chief for Reuters in Canada, and has worked for the company in Germany, Russia and the United States. When she's not running the Canadian news file, she enjoys long bicycling trips in Canada and beyond. In the following story, she writes of the support she received online after a diagnosis of early-stage breast cancer.

TORONTO (Reuters) - "Forgive me a freakout moment here," I wrote to a woman's-only Internet bicycling forum I've been posting on for years. "I have to see a specialist for something that they suspect is very early breast cancer."

It was my real friends who accompanied me to the medical appointments after that initial shock, and held my hand when I emerged from general anesthetic and surgery.

But in a world of instant Internet communications, a group of women I have never met provided a second level of support as I faced up to the diagnosis you never want to get.

The first replies to my post came within minutes, both from women with stories of their own and from those offering sympathy and emoticon hugs.

I don't know their real names, and they don't know mine, yet over the next weeks and months this virtual support network kept prodding me for news, and reminding me that they were rooting for me at every step of the way.

"I've read that good quality chocolate has cancer-fighting properties," one woman wrote with a big smiley face of encouragement.

"Hmmm, funny, I was working away when something told me to check the Women's Forum," another virtual friend replied. "Aaah, yes. Someone said, 'chocolate'."

Christina Koenig, head of media relations for the web-based support group Breast Cancer Network of Strength said Internet resources could be a tremendous comfort to women facing scary diagnoses like mine.

"You keep a brave face for your family and your friends and workmates and for your children, and it's wonderful to be able to talk to people like you who have been where you are now," she said. "It's anonymous, it's honest and it's immediate."

'TERRIBLE SISTERHOOD'

Network of Strength set up its own Internet forums last month, supplementing a round-the-clock telephone support center and offering women with a diagnosis of breast cancer a chance to compare notes and experiences.

"It's a terrible sisterhood to be part of," said Koenig, a former journalist who is herself a breast cancer survivor. "But nobody understands it like someone who has been through it."

Dr Marisa Weiss, a Philadelphia-area breast cancer oncologist and founder of a fact-filled website breastcancer.org, said it was often easier for patients to seek advice on the Internet than to go to hospital support groups, which could take place at inconvenient times or in hard-to-reach locations.

"The Web gives people the enormous advantage of asynchronous communication -- they can jump in and out on their own time, whenever they want to, and they can be completely anonymous or completely open," she said.