Bay Area Youth to Represent ALS Patients at Giants' and Angels' Baseball Games on...

Fri Jul 3, 2009 2:02pm EDT
 
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Bay Area Youth to Represent ALS Patients at Giants' and Angels' Baseball Games
on July 4th
Corey Reich, 23, ALS Ambassador for the World's Largest ALS Research Center,
will Participate in Events and Meet with Patients and Advocates

SAN FRANCISCO, July 3 /PRNewswire-USNewswire/ -- Tomorrow, Corey Reich, an ALS
patient from Piedmont, California, will attend both the San Francisco Giants
and Los Angeles Angels of Anaheim baseball games this July 4th as a
representative of the ALS Therapy Development Institute (ALS TDI).  Corey will
attend both baseball games to raise awareness of amyotrophic lateral scleroses
(ALS, Lou Gehrig's disease) a neurodegenerative disease of which he suffers
and for which there is no known cause or cure. 

"My hope is that my presence at both games will help to put a new face on this
disease by providing a personal connection to ALS," said Corey. "Although it
is an orphan disease, I hope to bring larger public awareness and increased
funding for research, which could speed up the discovery of therapies for
people like me living with ALS."

Corey was diagnosed in July of 2007, but he had shown symptoms for several
years prior.  After his diagnosis, he returned to Middlebury College and
graduated with honors in May of 2008.  He currently is the assistant tennis
coach for the Piedmont High School Men's and Women's Tennis Teams.  Corey and
his family have supported ALS TDI for the past 18 months and have raised more
than $700,000 in that time.  Fundraising events organized by "Corey's
Crusaders" have included a cocktail party in the Vancouver, Washington area, a
running race in Boise, a bake sale in Oakland, a dinner and dance also in
Oakland, and another dinner and dance in Bronxville, New York.  ALS TDI, based
in Cambridge, Massachusetts, is a 501c3 nonprofit charitable organization and
the largest research center dedicated solely to the development of
therapeutics for this debilitating disease.    

Corey's attendance at the Giants' and Angels' games coincides with the
culmination of Major League Baseball's "4ALS Awareness" campaign.  MLB is
working with four leading organizations -- The ALS Association, ALS TDI,
Augie's Quest (the Muscular Dystrophy Association's ALS research initiative)
and Project A.L.S. -- whose primary goal is to find a cure for ALS. The
initiative will culminate on July 4, 2009, which is the 70th anniversary of
Lou Gehrig's famous farewell speech at Yankee Stadium. ALS destroys the nerve
cells controlling muscles, ultimately causing complete paralysis. Average life
expectancy is three to five years after diagnosis.

"Corey is an amazing and positive young man.  He and his family have impacted
us greatly at ALS TDI.  We are very lucky to have an opportunity to know him
and have his family's support for our work.  It is heartbreaking that there is
so little that can be done for young men and women like Corey today. That is
unacceptable, and we must not stop until we have a better answer for all ALS
patients," said Steve Perrin, Ph.D., Chief Executive Officer and Chief
Scientific Officer at ALS TDI.

Although Corey is a life-long Oakland Athletics fan, he and his father Ted,
mother Wendy, and sister Clare, will take part in a pre-game celebration
honoring Lou Gehrig and ALS patients that are currently battling the disease
at the start of the San Francisco Giants game.  Corey will then board a plane
to Anaheim to arrive just before game time at the "Big A" to see the Angels
play the Baltimore Orioles.  At the Angels' game, Corey will again enter onto
the field with other ALS patients to repeat a similar ceremony in the Angels'
stadium and then spend the rest of the day with other ALS patients and
advocates attending the game as well. 

More information on Corey and his efforts can be found online at
www.coreyscrusaders.alscommunity.org. The "4ALS Awareness" campaign is a joint
effort between four ALS organizations; the ALS Association, the MDA/Augie's
Quest, Project ALS, and ALS TDI. More information is available on the Official
4ALS Webpage at MLB.com; www.mlb.com/4als

About ALS TDI
The mission of the ALS Therapy Development Institute (ALS TDI) is to develop
effective therapeutics that slow or stop amyotrophic lateral sclerosis (ALS,
Lou Gehrig's disease), as soon as possible.  Focused on meeting this urgent
unmet medical need, ALS TDI executes a robust discovery program, as well as a
multi-pronged approach to validate potential therapeutics; including small
molecules, protein biologics, gene therapies and cell-based constructs.  The
world's first non-profit biotech, ALS TDI has developed an industrial-scale
platform that allows for the development and testing of dozens of potential
therapeutics each year.  Built by and for patients, the Institute is the
world's only non-profit biotechnology company with more than 30 professional
scientists. In addition, the Cambridge, Massachusetts based research Institute
collaborates with leaders in both academia and industry.  For more
information, please visit us online at www.als.net.

Media Contact: Robert A. Goldstein, 617.441.7295, rgoldstein@als.net


SOURCE  ALS Therapy Development Foundation

Robert A. Goldstein of ALS Therapy Development Foundation, +1-617-441-7295,
rgoldstein@als.net

 

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