Epilepsy Therapy Project Launches My Epilepsy Diary, a Breakthrough eMedicine Consumer Health Product for People with Epilepsy

Thu Oct 15, 2009 1:08pm EDT
 
[-] Text [+]
Epilepsy Therapy Project Launches My Epilepsy Diary, a Breakthrough eMedicine
Consumer Health Product for People with Epilepsy



MIDDLEBURG, Va., Oct. 15 /PRNewswire-USNewswire/ -- Epilepsy Therapy Project,
a leader in accelerating new therapies for people living with epilepsy and
seizures, announces the release of My Epilepsy Diary, a breakthrough
data-gathering and reporting product designed to improve epilepsy care and
quality of life.


The My Epilepsy Diary launch coincides with the November 2009 National
Epilepsy Awareness Month.


My Epilepsy Diary allows patients to enter real-time details about their
seizures, medicines, side effects, moods, and other personal events, directly
from their browsers and smart phones. Users can easily describe these events
using the rich set of common seizure characteristics the product provides.


"My Epilepsy Diary is based on years of experience trying to gather
information from patients and families to understand the relationships among
seizures, adverse effects, medicine, and daily function," said Robert S.
Fisher, M.D., Ph.D., Director of the Stanford Epilepsy Center and
Editor-in-Chief of epilepsy.com. "This product is designed for simple entry of
information and visual assessment of issues, which is easy for the patient,
family, doctor, and nurse."


The innovative My Epilepsy Diary reporting feature allows patients to generate
personalized reports to bring to medical visits, providing their doctors and
nurses with not only snapshots of recent events  but also long-term trend
data, both key to assessing treatment effectiveness.


"My Epilepsy Diary encourages patients to record many different components
related to their seizures, to create a picture of how they change over time,"
said Joyce A. Cramer, President of Epilepsy Therapy Project and epilepsy.com.
"Bringing printouts from My Epilepsy Diary to a doctor visit makes it easier
to identify what component of the treatment plan can be changed to improve the
patient's overall quality of life."


Patients can also allow physicians at participating clinics to import data
from My Epilepsy Diary tables and charts into the patient's online medical
record. "My Epilepsy Diary is an e-medicine breakthrough for people with
epilepsy," said Ms. Cramer.


My Epilepsy Diary is the first product in the Epilepsy Therapy Project
Clinical Organizer, an integrated suite of consumer health tools and
information offered free of charge on epilepsy.com, the #1 epilepsy
information and networking site worldwide, with more than 200,000 unique
viewers per month.


About Epilepsy
Epilepsy is an incurable but treatable neurological disorder that affects
approximately 3 million Americans and 50 million people worldwide. Epilepsy
has many potential causes, but often no definitive cause is found.
Approximately 150,000 new cases of epilepsy will be diagnosed in the United
States this year.


For more information about epilepsy, see: 
epilepsy.com
epilepsy.com/epilepsy_therapy_project


About the Epilepsy Therapy Project
The Epilepsy Therapy Project is a 501(c) (3) non-profit organization whose
mission is to accelerate ideas into therapies for people living with epilepsy
and seizures. Founded in 2002 by a group of parents, distinguished physicians,
and researchers, the Epilepsy Therapy Project supports the commercialization
of new therapies through direct grants and investments in promising academic
and commercial projects. The organization has raised over six million dollars
towards its mission. Learn more at epilepsy.com.


About epilepsy.com
Epilepsy.com is an online resource that was developed by the Epilepsy Therapy
Project to provide in-depth information and community for people living with
epilepsy. The mission of epilepsy.com is to inform, empower and connect
patients, families and caregivers facing newly-diagnosed epilepsy and those
struggling with epilepsy that has resisted the usual treatments. Founders and
editorial board members of epilepsy.com include leading clinicians and
researchers in the field of epilepsy from leading medical institutions. For
more information, visit epilepsy.com.


Media Contact
Kim Macher, Executive Director, Epilepsy Therapy Project,
kim@epilepsytherapyproject.org, (540) 687-8077




SOURCE  Epilepsy Therapy Project

Kim Macher, Executive Director, Epilepsy Therapy Project,
kim@epilepsytherapyproject.org, +1-540-687-8077

 

Editor's Choice

A selection of our best photos from the past 24 hours.  Slideshow 

Most Popular on Reuters

  • Articles
  • Video